open access publication

Article, 2024

Opting out of cardiac rehabilitation in local community healthcare services: Patients' perspectives and reflections

Journal of Evaluation in Clinical Practice, ISSN 1365-2753, 1356-1294, 10.1111/jep.14015

Contributors

Ravn, Maiken Bay 0000-0001-6978-6070 (Corresponding author) [1] [2] Berthelsen, Connie Bøttcher 0000-0003-3158-3301 [3] [4] Maribo, Thomas 0000-0003-0856-6837 [1] [2] Nielsen, Claus Vinther 0000-0002-2467-1103 [1] [2] [5] Pedersen, Charlotte Gjørup 0000-0003-1116-8389 [2] [6] Handberg, Charlotte 0000-0002-1378-2449 [2] [7]

Affiliations

  1. [1] DEFACTUM Central Denmark Region, Aarhus, Denmark
  2. [NORA names: Central Denmark Region; Hospital; Denmark; Europe, EU; Nordic; OECD];
  3. [2] Aarhus University
  4. [NORA names: AU Aarhus University; University; Denmark; Europe, EU; Nordic; OECD];
  5. [3] University of Southern Denmark
  6. [NORA names: SDU University of Southern Denmark; University; Denmark; Europe, EU; Nordic; OECD];
  7. [4] Zealand University Hospital
  8. [NORA names: Region Zealand; Hospital; Denmark; Europe, EU; Nordic; OECD];
  9. [5] Social Medicine and Rehabilitation, Region Hospital Goedstrup, Denmark
  10. [NORA names: Denmark; Europe, EU; Nordic; OECD];

Abstract

RATIONALE: Despite cardiac rehabilitation and medical treatment being integrated parts of the pathway of patients with cardiovascular disease, as well as the well-establish positive effect, cardiac rehabilitation remains underutilised. In recent years, cardiac rehabilitation has increasingly been moved from the hospitals to the community healthcare services. This transition may be challenging for patients with cardiovascular disease. AIM: To investigate reflections and perspectives of patients opting out of cardiac rehabilitation in community healthcare services to improve participation and adherence to cardiac rehabilitation in the future. RESULTS: A total of eight patients opting out of cardiac rehabilitation participated in individual interviews. Opting out of cardiac rehabilitation is defined as never enroled or did not complete cardiac rehabilitation. The Interpretive Description methodology was used in the analysis where two themes and six subthemes were identified: (1) 'Structural and organisational factors' with three subthemes; Being a patient in the healthcare system, Enroling into CR when it is meaningful, and Getting back to work is vital, and (2) 'Patients' internal factors' with three subthemes; Feeling a desire to regain control, Seeing yourself as recovered, and Being aware of own needs. The analysis indicates that patients' decision to opt out of CR was multidimensional and based on a combination of factors. CONCLUSION: Ensuring that the healthcare professionals in the community have sufficient information regarding the patient and a clear communication plan between the healthcare professionals and the patient may reduce the transition causing confusion and frustrations for patients. Incorporating a vocational element in CR and ensuring that employers understand the importance of CR may hamper returning to work as a challenge to CR. Ensuring timely CR referral and enrolment and a transition coordinator may reduce the challenge of patients not viewing CR as meaningful. However, further studies are needed to fully understand how CR could become meaningful for patients opting out of CR.

Keywords

CR referral, Cr, adherence, analysis, beings, cardiac rehabilitation, cardiovascular disease, combination, combination of factors, communication, communication plan, community, community healthcare services, confusion, control, coordination, descriptive methodology, disease, effect, elements, employment, enrollment, factors, frustration, future, healthcare, healthcare professionals, healthcare services, healthcare system, hospital, improve participation, information, integral part, internal factors, interpretive description methodology, interviews, investigate reflection, medical treatment, methodology, organisational factors, participants, parts, pathway, pathway of patients, patient perspective, patients, perspective, perspectives of patients, planning, positive effect, professionals, referral, reflection, rehabilitation, services, study, subthemes, sufficient information, system, themes, transition, transition coordinator, treatment, vocational elements, years

Funders

  • Aarhus University

Data Provider: Digital Science