Article, 2024

Intensified parenthood: A qualitative study exploring parents' gendered positions in the care of child‐onset diabetes

Family Relations, ISSN 1741-3729, 0197-6664, Volume 73, 3, Pages 1899-1919, 10.1111/fare.13004

Contributors

Madsen, Mie (Corresponding author) [1] Campbell, Maria Athena 0000-0002-6065-4482 [1] Grabowski, Dan 0000-0002-4323-2974 [1] Johannesen, Jesper 0000-0003-2772-2567 [1] Jespersen, Louise Norman 0000-0002-4620-3474 [1]

Affiliations

  1. [1] Steno Diabetes Center
  2. [NORA names: Steno Diabetes Centers; Hospital; Denmark; Europe, EU; Nordic; OECD]

Abstract

Abstract Objective This study explores how parents experience and manage the care and challenges in the period shortly after their child is diagnosed with type 1 diabetes, while placing an analytical focus on gendered dynamics between parents. Background Studies have shown that parents' involvement in managing their child's diabetes manifests in diverse ways. However, how parents construct and negotiate their caregiving roles and responsibilities has received little attention. Methods We conducted interviews with parents of 20 children (aged 0–18) recently diagnosed with type 1 diabetes, totaling 34 interviews over two time points: 20 within 4 weeks of diagnosis and 14 follow‐up interviews 4 months later. The data were analyzed using theoretical thematic analysis and interpreted within the framework of positioning theory. Results The analysis generated four themes: childhood diabetes intensifies the experience of parental responsibility, fluid parenting roles with 100% commitment, negotiating parental positions, and drawback of polarized positions. Conclusion Parents engage in complex dynamics of negotiating their caregiving roles, often leading to gender‐influenced polarized positions that shape their experiences and approaches to care and challenges. Implications This study highlights crucial dynamics important to address for tailoring support to meet the needs of both parents.

Keywords

analysis, analytical focus, approach, attention, care, caregivers, caregiving role, challenges, child's diabetes, childhood diabetes, children, commitment, complex dynamics, data, diabetes, diagnosis, diverse ways, dynamics, experiments, focus, framework, framework of positioning theory, gender dynamics, gender positions, interview 4 months, interviews, involvement, parental involvement, parental position, parental responsibility, parental role, parents, period, polar positions, position, qualitative study, response, role, study, thematic analysis, themes, theoretical thematic analysis, theory, type, type 1 diabetes, way, weeks, weeks of diagnosis

Data Provider: Digital Science